Yes, I avoid yoga for that very reason. I was an avid social and competitive dancer for years. Believe it or don't, you don't need anything more than your own body weight to achieve 'weight-bearing' exercise. The problem with using weights is that it puts too much pressure on joints that can't usually withstand it. And for aerobics, it's estimated that even running doesn't top Viennese waltz. You don't have to build a lot of muscle - just tone what you have. And that also gets meets the 'no impact exercise rule' as well. Because, even if you go up and come down? That's mostly illusion and you learn to do without any impact. Go sign up for some classes at whatever your local independent ballroom are - you might find anything from Salsa to Tango. See if you like it!
I dumped PT because of the pool chemicals, too. And really, few in that game understand our mechanics. (I got more gains with a highly-qualified dance instructor, actually. They're kind of used to us. We need to stretch, and dance lets us do it!) I won't even use the pool here at home. Many, many of us are chemically sensitive and have all kinds of weird reactions to medications and such. But I live near the ocean, so I have a place to get in the water if I want to. Hopefully, you'll find a solution that suits you.
Tribune - yes, skin is what you see. But collagen is everywhere in the body. It's more than just little joints and stretchy skin. There are also risks for aortic dilation, digestive and vision issues, etc. Even people within the same family who have Ehlers-Danlos can have different problems and different joints that misbehave. Some people have it very mildly, while others are completely debilitated. Some people have the problems with their fingers that the ring splits are intended to solve, others can't stand up without rolling right off their ankles. (Gotta figure - we all got half our genes from the other parent, in some pile-up that creates nearly random effects at times.) However, being rare, not a whole lot of research has actually been done.
Some of us are conducting a genealogical/genetic research project over on inspire.com (the Ehlers-Danlos National Foundation's forums). If you are interested in joining it, jump on in! We expect to be announcing it formally shortly. The challenge has been that markers for this inherited condition have not been located for all types yet. We have good reason to believe that this is the result of multiple mutations in the population causing the condition. So, we'll be looking to verify lineages using both autsomal dna and traditional genealogical documentation (something traditional researchers seldom, if ever, employ).
Goal is to isolate those family groups and get rid of at least some of the variables that have most likely caused research to date to fail. We've found we have people amongst our own group with expertise in various life sciences and health informatics, so....doesn't get any more DIY or 'maker-ish' than this! Only with actual humans, not 'bots. Hopefully, one day, our kids and theirs can be diagnosed earlier and get better interventional treatments so that they can have better quality of life.
Huge thanks for the article, Cory and ask-a-zebra! What a happy surprise, today!