This is a perfect example of something that absolutely can't be done on a shoestring. Kid with rare, or late stage, possibly otherwise untreatable cancer is typically medically fragile. Bloodwork, other labs, radiology may need to be done. You need all hands on deck. Some support people may be going paycheck to paycheck, and may need to temp, do childcare or make use of the time, so they can afford to keep a job that will hopefully be there in weeks or months. If there's an emergency with the building, you can't wait around if water, electrical, plumbing aren't working, so facility people need to be on site. Plenty of people in research are already working insane numbers of hours, for less pay than in the public sector.
The republican congressman responsible for this kerfuffle should instead donate their living carcasses to science for medical testing and vivisection so we can make up for the lack of progress happening while they're capering about, drinking, talking on Fox and fundraising.