This is such an important and timely topic. I’m a journalist who writes about science. I’m the author of a short memoir about Huntington’s called “Blood Brother: The Gene That Rocked My Family.” A few years ago we discovered my brother had Huntington’s disease shortly before his death. My family was devastated, and then the rest of us faced an agonizing decision: should we get tested? What good would it do to know, since there aren’t any treatments or a cure? Some of us did take the genetic test, while others didn’t want to know. But the secrecy around Huntington’s continues to haunt my family.
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