Hey, thanks. I am in better shape than those mentioned in the story, though. And I am very, very grateful for that much.
So, if I tend to be little angrier about the whole situation - that's why. I had to see some things this past year that already made my blood boil, and am rolling through the horror stories of friends I have made who also have it. Although, the experience doesn't seem to have blotted out all reason. If anything, it'll make you REALLY stop and take a look at what is important or not, and what this mortal coil thingie really is. That's a horrid/beautiful experience, in its way. And though I couldn't actually wish it on anybody, the worst of it was probably the sense that the .gov was all up my existential kool-aid at all.
Looks like, the FDA continues to roll, and the little girl mentioned is still going to get her chemo. It does kind of point out that there's just no way to say everybody is in this boat or that. We aren't numbers. I tend more to think the bigger issue is that these articles and press releases tend to make us look at a given case, forgetting perhaps that THE People has to be about individuals and their freedom to make their own choices and deal with their own needs, or else it doesn't really mean anything at all.
The little girl is a human. As am I, as are you. If it doesn't serve us all, it doesn't serve us. Those existing federally-funded cancer centers offer little to nothing in the way of individualized choices and care. The ObamaCare program will cut 8 million poor and those from underserved populations (read, Black Americans) out of the program altogether. doesn't matter WHAT exact health problems they encounter. They will be judged unworthy of consideration. But, they won't each be put in your face like this little girl has been.
I got benched for 3 months, while my doctors tried to get my treatments approved through Medicare channels - not because of anything other than our wanting to use an approved approach to a thing that doesn't happen all the time. Not experimental, not a clinical trial. Just bureaucrazy. Pretty sure I wasn't the first, or that this little girl will be the last.
I INSIST that we deserve much, much better than this. Because, if they can do it to me or to her, they can do it to you, too. And that's just plain unacceptable. Not all of that happened because of this shutdown. We already had a problem and some more on the way. If something I could tell you lends a better understanding of the problem from this perspective, or a better way to solve it, then hey. I'm a happy girl. Because, I'm pretty sure nobody here likes what I'm talking about, and that's a GOOD thing. I'd worry more if you thought it was ok.
Link to story on the little girl: